First I wanted to say something that I have been thinking about for the last few weeks. I talked to Chris and he understands and I hope all of you do too. For as long as I have been posting these blog entries I have been trying to be whimsical and positive in my writing. Basically trying to keep a good tone on things so that my blog entries weren’t so depressing even when the news wasn’t good. Since my health has gotten worse and I’ve started coughing up blood I am finding it more and more difficult just to form thoughts, since it takes all of my effort just to be able to breathe properly these days. So you’re going to notice that starting now I am just putting the information out there. I’m not trying to make it sound like anything more than it is. Just the facts, if you will.
I saw my oncologist yesterday and we discussed my current situation. In particular we went over the results of the CT Scan. If you read Chris’ previous blog entry you’ll know that the results posted raised more questions than answers. There was some stuff in the report that didn’t make much sense to us. Here’s a summary of the whole thing. This isn’t everything (the report was rather lengthy).
- There is redemonstration of mildly enlarged lymph nodes in the mediastinum and hila. The size of the lymph nodes has mildly diminished.
Here’s a perfect example of why we were confused. The report mentions the lymph node once again being enlarged, yet then says the size has diminished.
- Multiple pulmonary masses are redemonstrated. Overall, these have increased in size and number.
To us this is pretty much self-explanatory. There are more tumors and they’re getting bigger.
- Bilateral trace pleural effusions are redemonstrated.
- Multiple bony metastases are redemonstrated in the thoracic spine. These have increased in size and density. Redemonstration of a subacute fracture of the right sixth rib.
The section on the spine caught me by surprise. I’m still unclear on that and my oncologist can’t confirm that at this time and is ordering a review of this whole report. However, the subacute fracture was confirmed and may explain some of the pain I am having in my rib cage area. The current theory is that the rib was possibly fractured from coughing, which is quite severe lately. However the fact that it is listed as redemonstrated is still a mystery since there was no prior report of this. Again we’re still waiting for a review of the report.
In maintaining my current pain, internal bleeding and other symptoms I went immediately from two to six prescriptions to handle the various symptoms I am dealing with currently. As you can guess, being more medicated is going to make me even more out of it and make it harder to form coherent thoughts, but I guess I can’t think very well when in severe chronic pain and coughing all the time either. In the last 6 months I have lost over 40 pounds just due to lack of appetite and chemotherapy during that time.
Speaking of which I am being referred to Hospice. Things have finally gotten to a point where my oncologist feels I could benefit from the more direct management of my pain and medication via their services. Right now it’s a referral and until we have an interview I don’t really have any more information on what will happen. More on that later.
I received another beautiful gift yesterday. A while back I was trying to sort out some of my crafting supplies and donated a bunch of quilt squares to a friend. She surprised me with a gorgeous quilt for me. She also let me know in her lovely card that the quilts that she makes will given away for others to enjoy. Steph you are an awesome and very talented friend! Thank you!